"When we had our baby diagnosed with Moebius Syndrome, we longed for other parents to Moebius children to discuss with, getting to know how life is with the syndrome and have more facts about it."This website is made by the Swedish Moebius Support Group to provide information about the syndrome, about the support group and about ways of getting in touch with other adults and families with Moebius Syndrome.
If you want to get in touch with the Swedish Moebius Support Group please contact:
Rangela Fredsjö
Rubingatan 33
421 62 VÄSTRA FRÖLUNDA
Tel +46 (0)31 47 15 70
E-mail:
Rangela.Fredsjo@ub.gu.seLinks to other international and national support groups.
